I spoke to Aleksas from Lithuania about his experience of living with ME and what life is like for patients there....
- How did you get ill?
I had a very high fever when it started, and terrible headaches. After a few days the fever dropped away but I felt very weak and still sick. I spent 2 weeks in bed unable to sleep normally. Blood test results were good; doctors told me that it was just some kind of strange flu. They told me that I would be fine, but I wasn’t improving. Now after six years I have recovered a little bit and feel better, but still live with fatigue and other symptoms including a ringing in my ears, low grade fever, brain fog, sleep problems, joints and muscle pain.
- How does this ME/CFS affect you?
- Have you been diagnosed?
- How difficult is it to get a diagnosis of ME/CFS?
- Do you know of any support groups or associations in Lithuania for those suffering from ME/CFS? What are their aims?
- Are there doctors who would be interested in the research into ME/CFS and the recent scientific advances?
- How do doctors and government perceive ME/CFS in Lithuania?
- What treatment is currently prescribed to those with ME/CFS?
- Are there any specialist clinics for ME/CFS patients in Lithuania?
- Do patients receive adequate support? Can they receive disability benefits when they are unable to work?
- Are patients and doctors aware of the Rituximab trial, which is currently taking place in Norway?
- And what about the controversy surrounding the PACE Trial in the UK?
- What does the future look like for ME/CFS patients in Lithuania? Is there any reason to be positive?
- What changes would you like to see to the treatments currently proposed in Lithuania?